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Orphanet

Knowing the rare for better care

Country:Switzerland

Canton or department:Geneva

Website:http://www.orphanet.ch

Contact:contact@orphanet.ch

Address:c/o Hôpitaux Universitaires Genève HUG Rue Gabrielle-Perret-Gentil 4 Bâtiment de Base, 3ème 1211 Genève

Orphanet is the international reference for information on rare diseases and orphan drugs. Aimed at all audiences, the website is free of charge and available in seven languages.

Coordinated by France, the database is fed by forty partner countries, including Switzerland. It provides access to encyclopedic texts intended for health professionals and patients as well as their families. For each country, it lists all the useful resources in the field of rare diseases concerning expert consultations, diagnostic laboratories, ongoing research activities and patient associations.

The aim of Orphanet Switzerland is to improve information and care for rare disease patients in Switzerland.

Type of organization:

NGO, CSO or association

Health field concerned:

Medicine in general

Type of result provided:

Delivery of care

Vocation:

Mainly local